Trust & Policy Workgroup
Joshua Richardson
Co-Chair
RTI International
Philip Walker
Co-Chair
Vanderbilt University
The Trust & Policy workgroup will identify and address gaps in policy and issues (external or internal to the MCBK community) that would impact the quality of the data and knowledge, or its trustworthiness. The Trust & Policy workgroup will coordinate efforts to apply, evaluate, and build upon the trust framework to ensure that all stakeholders can participate as trusted and trustworthy agents.
This will be an action-focused workgroup, concentrating initially on how we might define and convey transparency in the CBK ecosystem. This activity will include alignment with the MCBK vision, as stated in the Manifesto, of ensuring that the knowledge that has been gathered by our community properly reflects the best and most current evidence and science, which will, in turn, safeguard that the knowledge can be trusted for use to improve health and healthcare. This workgroup will also focus on technical systems and ensuring robust and unbiased methods to support:
Transparency.
The principles of findability, accessibility, interoperability, and reusability (i.e. FAIRness).
Identifying the currency, validity and provenance of computable biomedical knowledge.
Goals
Understand the current CBK landscape as it relates to trust, governance of CBK, and policies for CBK.
Identify roles and opportunities for the MCBK community in promoting transparency and trust.
Define attributes of and potentially develop prototypes for CBK “product information labels” that would promote transparency of trust.
Develop model governance structures.
Develop recommendations for measuring and evaluating trust and transparency of CBK artifacts, implementation, and evaluation.
Who?
The work of the Trust & Policy workgroup will be of interest to all stakeholders in the CBK ecosystem. MCBK stakeholders are the knowledge creators, curators, implementers, technology providers (electronic health records, decision support platforms), knowledge managers, clinical end-users, and consumers of CBK.
Papers and Publications
A survey of computable biomedical knowledge repositories